Our Dad sent out an email to all his friends updating them on this latest development. The very same evening, one of them calls him back. He knows the friend of a friend of Dr Martelli from Perugia. How typically Italian! So if all goes according to plan, Mar, Dad and I have an appointment next Thursday with Dr Martelli in Perugia.
Fingers crossed.
This center specializes in Haploidentical Stem Cell Transplantation which means they can take the siblings stemcells even if originally incompatible and work some kind of magic to adapt them to Mar's.
On the American front, Dr Kantarjian read Mar's medical summary and immediately responded with his suggested treatment...Just like that. His exact words being: "You could try clofarabine + ida + high dose araC or Fludara+ highdose araC + mylotarg". Can we get a prescription for that at our local farmacy? Seriously though, we're really impressed with how fast he acted and asked him to call Mar's Dutch Doctor next week. The policy is a deposit of 39000USD for a consultation/evaluation...Crazy...On a positive note, they said we could pay with Credit Card...
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Paula & Mara, I'm so sorry, ashamed and sickened by the response from the American Doctor. $39k? Seriously?? I sent some other info that is quite liberal and I guess it is good to see how it goes in Italy! Fingers crossed for sure. Otherwise, I've asked around and received a lot of feedback for other clinics over here. Love to you all! Shelly Xx
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